Posted by Sarah on Mar 26, 2016 in Uncategorized

As most of you know Beth is nearly 17. For many years we tried different therapies; speech therapy, occupational therapy, allergy elimination, metal detoxification. If it didn’t hurt we tried it. We did gluten free with her when she was in kindergarten but it made no difference. Yes she does seem to get gut problems but none of the dietary things seemed to make any difference. When she started high school we decided that it was enough to just let her settle in to a new environment and, as it was a special school anyway, just let her be with her new way of learning. That, and the fact that we’d pretty much exhausted any new treatments or therapies and the money that goes with them!

Last week I was looking on facebook and came across a movement therapy. Now our Beth is not big on movement. Since I joined the gym however I’ve been seeing the benefits in movement and the brain, how it lifts mood, how it puts me in a good frame of mind for the rest of the day, a calm frame of mind. How it gives me more energy to get stuff done, whether it be physical stuff or studying. Beth loves to take the dogs for a walk and I’ve been thinking of different ways we can incorporate exercise into her life and what sort of exercises. It grounds her and I want her to do more. In fact I even considered taking her to the gym with me. Anyway, I saw this movement therapy thing and I couldn’t get it out of my mind. I called Tony who runs the program and asked him if he’s worked with kids on the spectrum. He was honest and said not really though he’d worked with a child with mild aspergers with success. I wondered aloud if, the more severe the case is, the results would be more obvious and he thought that perhaps they would. We took Beth to see him today. He showed us the way he works, he showed us the exercises that he does and how Beth isn’t terribly good at any of them. Which always gives me hope, makes me think that if she can master them then there would have to be improvement. I wont pretend that I really understood what he talked about but I sort of got it, it was all to do with motor skills and left and right sides of the brain communicating. I can’t explain it but I did get it because it made sense. So, now, finally, I have something new to write about! Jo and I are going to interview Tony for our show JAS CHAT and film some of Beth’s progress. I say progress because that’s what I believe she’ll have. Beth liked Tony and so did I. He’s local which is handy too. I think it will be a good venture all around. He can see if his program works with kids on the spectrum as well as the kids that he says he works with, such as ones with ADHD and Auditory Processing Disorder. On one of his posts on a local page a woman jumped on her high horse when I dared to ask if he’d worked with kids on the spectrum. She quickly told me that autism can’t be cured, or words to that effect. I said that I believe autism is a combination of issues and if we can help each issue then there has to be some improvement. I’ll let you know how we go. Here’s a link to Tony’s website. Hopefully it will be a whole new type of therapy for our kids. We start on Tuesday. I can tell Beth that it’s what we do after we turn 17 as it’s her birthday!


Parent teacher interview

Posted by Sarah on Mar 24, 2016 in Uncategorized

Beth has been particularly trying lately. And when I say trying, I mean she’s actually been particularly turdy. For those not familiar with the term, to put it in straight talk, she’s been a right shit!

We had parent teacher interviews last week. Beth’s been having issues with a boy in her class called Jesse. She had told me last year that he’s mean to her and he calls her stupid. We had talked about it and she’d told me that he’s mean to everybody. I said that it’s not so bad when they’re just mean kids as it’s not directed at her in particular and she agreed. This year though she’s been saying she’s sick more often than not so I asked her if she was getting along ok with the other kids. She said that Jesse and her were on the same bench in cooking and he’s still being mean.

The week before last she had said that her heart was hurting at school. They called me and asked if there was any predisposition to heart issues and I said no and that we had been to the doctors and got everything checked out. She had had an ear infection the week before and the doctor had checked her heart and said it was a bit fast but probably because of the infection. We had been back and told it was ok but she had a sore chest. The doctor said it was probably inflammation due to the infection and Panadol would do the trick. We’d also gone to the osteopath to make sure it wasn’t her ribs due to posture so got it fully checked out. Anyway, she’d figured the heart thing out and told the school that her heart was sore. The issue was that she was incredibly rude about it. She demanded ‘call my mother and have her pick me up immediately’! She also demanded that they gave her books to read in the sick bay. When told no she cracked it. All in her horrid high pitched ‘I am the queen’ voice. They did ring me and I told them that there was nothing wrong with her so she stayed there. And found the first aide books and read them!

Anyway, at the parent teacher interview we discussed Jesse and how Beth tends to get a bit obsessed with people and things they do that annoy her. The teacher positioned herself where Jesse would stand where Beth said he ‘just keeps looking at me’ and pointed out that Beth wouldn’t know this unless she turned around to look at him in the first place. He obviously has realised what buttons to push with Beth and she’s reacting and is now annoyed at everything he does. Then there’s her attitude to the teachers. When given a tub of icing and lots of choices for decorating her cupcakes she promptly tipped the tub on top and said she was finished. When told they didn’t look like the ones made by the visiting teacher she said that hers looked much better than the nicely decorated ones. When the teacher pushed it Beth told her that she didn’t know what she was talking about and that Beth was the expert! When confronted with the news that I had been told ALL about her behaviour and that I would be told in future she wasn’t terribly happy as she knows there will be consequences. I did ask if she is finding being on her feet a bit of a strain all day for the 2 cooking days a week. Her solution was that they supply her with a wheelchair!

This morning was a doozy. It’s the last day of term and she thought I’d give her the day off. We had one of those mornings where she just kept going and I got angrier and angrier. She did things like having a shower and going to put her pyjamas back on. She doesn’t let go of an idea and kept insisting she was sick with a chesty cough even though the only time I heard it was when she did it when telling me about it. When we left the house she shut me out and said goodbye. She lost her Samsung tablet for the car ride as I had told her to be quiet. Then in the car she went on and on and on. When I told her to stop talking to me she seemed to invent an invisible friend. Usually when she talks to ‘somebody’ else it’s her fly Cuddly or her spider Leggy but there was nobody there. She kept talking about me in a quiet voice. Things like ‘maybe next time she’ll believe me’. Or ‘she’ll let me have the day off next time.’ This went on and on and I kept getting madder and madder until finally I snapped and swore and told her I didn’t want to hear her voice talking to anybody for the rest of the trip. I took a sip of my traveller coffee and as I did I heard her whisper ‘she’s thirsty’ to whoever the hell she was talking to about me!

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