Beth’s birthday – 16!

Posted by Sarah on Mar 29, 2015 in Uncategorized

Can you believe my baby is 16?! It just goes so quickly. She’ll be getting a pension shortly (not that I will tell her that at this stage), she’s doing VCAL, she wants to get her learners. I’m not sure what to do about that one. She talks about really expensive cars that she wants to buy and drive. I guess it wouldn’t hurt her to sit for her learners but there is no way in hell that she’ll be able to be let loose on the road. Not the way she is now anyway. She can’t even walk down the street without holding hands because she does her funny jump in the air thing and might land in the street.

I had no idea what to get her so we’re letting her go and buy a turtle today. We also got her a giant muppet type of puppet, a gorgeous handbag that she chose, one that fits her tablet, and a do it yourself mosaic mirror. She’s been doing mosaic’s a lot at school and seems to enjoy them. I got her a couple of dvds from the kids. So I think she’s done ok. Bev and John are giving her the Family Feud board game that she asked for.

I was talking to some friends yesterday and the subject of after high school came up. My friend’s sister in law has a son with autism, they don’t live far from here. He is attending a media school which caters to adults with disabilities, from 18 – 21. It sounds fabulous, I’ll put a link here. They can choose their own characters and write plays around their choices. They can do tv presenting which Beth would LOVE, even presenting the weather. It sounds just perfect. It’s not too far from here, in Ringwood.

Things have been a bit up in the air at the moment. Just for a change! I had a type of seizure a couple of weeks ago. I then had an MRI and they found a benign tumour, pushing on my brain. So basically I have to go into hospital in the new few weeks and have it removed. It’s a fairly big op, I’ll probably in hospital for the good part of a week. It affects my balance so if they see that the tumour has grown into the balance nerve they may have to sacrifice it which would mean staying for longer and going to rehab to retrain my body to balance. And I’ll have a whopper of a scar. The nice side of that is that I now qualify for a wig to be claimed on extras so have somebody coming to fit me for one on Tuesday! (Glass half full and all that, you know me!) The other problem is that they don’t actually think it caused the seizure. So I still have to have heart monitors and a thing called a Doppler. I will also see the actual neurologist at the Alfred Hospital, where I saw the neuro surgeon on Wednesday. Anyway, there you go, as long as I’m alive, that’s all that matters. I can deal with the rest. This means however that obviously I can’t drive. So not sure what’s going to happen with getting kids to school. Bridie’s not so hard, she’s not that far away. But I might have to home school Beth. I’m going to find out when she is doing her VCAL subjects. I believe they are covered over 2 1/2 days over the week. If that’s fairly intensive then I may be able to send Beth, even for 2 days a week.  Then her teacher can send me home the rest of the work. They’re very accommodating so will speak with them in the new term. If I’m not in the hospital. There’s already been talk of organising a bus to come over this way from Beth’s school, to travel not far from Bridie’s school, as there are a few from the Dandenong Ranges attending now. So we might be able to slot in there somehow. Anyway, Beth would be happy to be at home, that’s for sure. The kids have been worried about me. When I first came home from the tests I told Beth that I am going to be ok and she said ‘Well at least you don’t have a brain tumour’ to which I had to state that actually, yes I do. Then when she kept asking if I would die, and I would say no, she would say ‘but you said that about Gransha and he still died.’ Which is true, but only when I didn’t think he was. So I had to go through that he was sick, there were other things wrong, he was older. But the reality is there are no guarantees.

She’s been rather dominating in the last few weeks, standing her ground. Not sure if it’s because of what’s going on with me but I’m pretty sure it’s just her being a teenager. She’ll refuse something, such as eating something that Paul has cooked. He’ll say – you have to eat this – and she’ll say – no I don’t and I’m not going to. I know the secret (as does Paul) of just calling out from bed – ok then, no tablet for the rest of the night – and that will make her eat it! Paul tends to go over the top though and I’ll tell him so, he goes to the other extreme. He’ll say things like – you’ll never go on the tablet again – or – that’s the last time you’ll be able to do that then! – in his desperation to basically get his own way. I try to explain that you can’t make a threat that you can’t carry through with but he is so in the moment that he believes he will!

I’ll pop some photos on of Beth’s birthday when I get some. Otherwise it might be a while so I’ll see you on the flip side!


March 12th 2015

Posted by Sarah on Mar 12, 2015 in Uncategorized

I’ve had Beth home sick for the last 2 weeks. She of course is delighted with this. I haven’t minded it either. She’s pretty easy, she knows she has to stay in bed and read and I don’t have to drive too much. Last week Bill was off too and 2 of the days Bridie hasn’t been well either. So it’s an enforced stay at home for me. I’ve been having lots of trouble sleeping so that side of it has been lovely.

Beth’s at a rather amusing stage. In fact it’s one she’ll probably always be in. A combination of teenager/adulthood and childish delight in all things young. Being not well and very chesty I started running nice hot baths for her last week. It’s been ages since we had baths. In our last house it was such a horrible old thing that we never had them. When we moved here we had them to start with but then our old cat Henry started pooing in the bath. When the then kittens came along they followed suit, even though they had kitty litters. Now that they’re outside when they want to be, there’s no need for toileting inside thank goodness, so I have a lovely clean bath that can be used for what it’s meant to be. We just dropped Bridie off at school and I told Beth she could either have a shower after breakfast or wait til we got home and have a bath. She said 2 very cute things. One was asking me where our bath toys were (I did of course go onto Ebay and buy her some!) The other was asking if we could wait until Sesame Street is over before she has it.

The other side of it is a combination of dark and cheeky. We were watching Grey’s Anatomy yesterday and somebody fell and hit his head, leaving a bit puddle of blood. Beth asked me matter factly if they used chocolate sauce for the blood to which I replied that it was too red for that. She said ‘but that’s what they used in the shower scene from Psycho.’ So of course I looked it up and of course she was right. Because it was a black and white movie they could get away with it. Not that she’s seen Psycho, she just researches things so much.

It’s such a shame that Beth has an issue with laughter tracks in tv shows too, she’ll research things but not actually watch them.  She knows all about Friends, everything about it, but wont watch it because of the laughter. It’s the one thing that’s never gone away. She had the fear of elephants and their noise and now she’s ok with it. She did watch Big Bang Theory for a while, obsessively so, then got a bee in her bonnet about it and no more. Ever.

The cheeky side comes out often in our word games. These are usually played in the spa. We play Family Feud, would you rather, 20 questions, Snog Marry Avoid. It’s good fun actually. But Beth likes to push the boundaries. This morning we were in the car. Bridie wanted to play would you rather as we are buying Beth a turtle for her birthday in a couple of weeks and she wanted to ask if a) she wanted a turtle b) if she wanted a boy or a girl and c) what she would call it. We established that yes she wants one, she wants a girl and she would call it Lois from Malcolm in the Middle. Like I didn’t see that coming! Anyway, it was her turn to ask a question. So she looked at me and said “Would you rather DO Leonard Nimoy or Megan Fox?” I said “I beg your pardon?” and she smiled her sly little smile of innocence and said “What?!” I asked her what her interpretation of doing somebody was and she smirked and asked “Playing patti-cake with them?” Cheeky little shit, she knew exactly what it meant!

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